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Veranstaltungen


28.02.2018
European Reference Networks – Accelerating and Improving Diagnosis for Rare Diseases Patients

28 February 2018 Room A3G2, European Parliament, Brussels

Hosted by European Reference Network for Rare Bone Disorders (ERN-BOND)

On the occasion of Rare Diseases Day on 28 February 2018, the European Reference Network for Rare Bone Disorders (ERN-BOND), together with MEP Elena Gentile, are delighted to invite you to a European Parliamentary Meeting entitled: European Reference Networks – Accelerating and Improving Diagnosis for Rare Diseases Patients.

 

European Reference Networks (ERN) connect Excellence Centres across Europe with the aim of tackling complex or rare medical diseases requiring highly specialised knowledge and resources.

The event aims to present the findings of the ERN-BOND White Paper on Diagnosis and discuss solutions on how to best reduce the average time to accurate diagnosis for rare bone diseases and, more generally, rare diseases.

 

The Parliamentary meeting is supported by EURORDIS- Rare Disease Europe and will be held in conjunction with the exhibition RareLives on the 1st Floor.



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